If you follow my blog you likely have seen this little guy make an appearance on my blog a few times throughout his 1st year. Not only is he special because he's my nephew and my sister and brother in-law's first child, he also is a miracle! You see T. was born with the worst form of Spina Bifida, Myelomeningocele. My sister and brother in-law found out about their son's birth defect at their first ultrasound around 20 weeks of pregnancy. Soon after the diagnosis they were given a list of risks such as still birth, hydrocephalus (fluid on the brain) which can cause brain damage, and club feet. The remainder of my sister's pregnancy she was closely monitored. We asked everyone we knew for prayers. God is good because T. was born at 39 weeks on October 28, 2010 a healthy 8 lbs. 8 oz. and 20 1/2''! Due to his birth defect it required a c-section and it all went smoothly. He was stable upon birth and a few hours afterwards was transported to a children's hospital. Less than 24 hrs. after birth he had surgery to have the spinal nerves placed back into the spine. T. was born with a small bubble on his lower spine with the spinal nerves inside. You would never have known, he sports a very small scar that looks like a scratch on his lower back. Dr.'s warned my sister and brother in-law to watch for signs of hydrocephalus, club feet, loss of bladder and/or bowel control, and were told that he may never sit or walk. Well, this big guy of 26 lbs. has beaten all the odds! He has developed perfectly over his 1st year and started walking a few weeks before his birthday! You would never know by looking at T. that he has Spina Bifia. October was Spina Bifia awareness month, go check out their website for more info.
He loves to clap, maybe because he knows he's beaten the odds.
What a difference 1 month and 1 year make! I had to make him a new hat from Robin's Nest Boutique
25 comments:
he is adorable! he weighs as much as my 3 year old! ha! i can see he looks kinda like your daughters...so cute you can tell they are related!
He is soooo cute and I'm so glad that he is doing so well. He is walking which in and of itself is an absolute miracle. What a cutie pie and yes, I can see the family resemblance in him.
What a blessing! Great photographs to commemorate a very special birthday :)
wow, what a story, thanks for sharing. he's so cute and he knows it LOL. glad he's growing and continuing to beat the odds. these are so cute. love the tie.
what a cutie! these are super photos of a super boy!
he is a gorgeous baby!!!!! what a way to beat the odds and let the docs know that not everything is so negative!!!! great pics!
What a beautiful boy!! Really fun shots!
What a handsome little guy! I'm so glad to hear that he is doing so well, I hope he continues to do so.
What a fighter! He looks so stong and healthy- and is one cute guy. I am dying over the tie shots. Little boys are the best and his story is so inspiring. Great work!
Such an incredible story. Thank you for sharing.
Oh, He is so cute! What an inspiration!
What a cutie! And those eyes! :)
Ahhhhh, adorable! Great job!!!
He is a walking miracle! Absolutely amazing what he has overcome! And he is just too cute forvwords - fantastic job on these, Robin!
What a cutie! Amazing story- and a true miracle!
He's adorable! He's truly is a miracle!
ohhhhh how overly adorable! <3
what a little miracle!! and the one of him standing with the tie is just perfection!!!
oh my goodness! what a cutie! and that tie!!! ah! <3
What amazing eyes! Thank you for sharing his story---very inspiring ;)
what a little cutie!!
What a sweetheart. Love those big bay blues!
How sweet! I love that last one!
Love these shots! He has beautiful eyes! What a little blessing!
He's so cute!
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